Individual arrival | |
05:30pm – 08:00pm | Registration |
06:00pm – 08:00pm |
Welcome Reception/Get-together (incl. opening of exhibition, 1st floor) |
08:00pm | End of Pre-Conference Day |
08:00pm – 10:00 pm | Speaker‘s dinner and guided city tour (speakers only) (meeting point: at 08:00 pm at the main entrance of the Stadthalle Aschaffenburg) |
07:30am – 06:30pm | Opening Registration Desk |
08:00am – 08:45am |
Breakfast Seminar: “The Glut1DS story” Joerg Klepper, MD (Aschaffenburg, Germany) |
08:45am – 09:00am |
Opening messages Jürgen Herzing (Aschaffenburg, Germany) Darryl De Vivo, MD (New York, USA) |
Session I: Glut1 Research | |
09:00am – 09:05am |
Introduction & Moderators: Juan Pascual, MD (Dallas, USA) & Umrao Monani, PhD (New York City, USA) |
09:05am – 09:35am |
How does the diet work? Ketogenic dietary effects and mechanisms in brain metabolism Jong M. Rho, MD (San Diego, USA) |
09:35am – 10:05am |
How to feed hungry neurons: the astrocyteneuron- lactate-shuttle Pierre Magistretti, MD (Lausanne, Switzerland) |
10:05am – 10:30am |
The Genetics of Glut1 Deficiency Syndrome Sameer Zuberi, MD (Glasgow, UK) |
10:30am – 11:00am |
Break/Coffee-Tea (exhibition hall) |
Session II: Novel Therapies for Glut1 Deficiency Syndrome | |
11:00am – 11:05am |
Introduction & Moderators: Sameer Zuberi, MD (Glasgow, UK) & Jong Rho, MD (San Diego, USA) |
11:05am – 11:30am |
C10 for Glut1 Deficiency Syndrome Helen Cross, MD, PhD (London, UK) |
11:30am – 12:00pm |
Lactate for Glut1 Deficiency Syndrome Michèl Willemsen, MD (Nijmegen, Netherlands) |
12:00pm – 12:30pm |
New mechanisms and potential treatments for Glut1 deficiency: Studies in cells, mice, children and adults. Juan Pascual, MD (Dallas, USA) |
12:30pm – 01:00pm |
Gene therapy for Glut1 Deficiency Syndrome Umrao Monani, PhD (New York City, USA) |
01:00pm – 02:15pm |
Lunch Break (exhibition hall) and Suggestions and discussion for starting and continuing a successful Glut1DS treatment Moderator: Eric Kossoff, MD (Baltimore, USA) Speakers: Sabine Scholl-Bürgi, MD (Innsbruck, Austria), Frauke Lang, RD (Mainz, Germany), Frank Brandhoff, MD (Radeberg, Germany) Topics: |
Session III: Living with Glut1 Deficiency Syndrome and Ketogenic Dietary Therapies | |
02:15pm – 02:20pm |
Introduction & Moderators Mackenzie Cervenka, MD (Baltimore, USA), |
02:20pm – 02:35pm | Life quality in Glut1 Deficiency Syndrome Sara Olivotto, MD (Pavia, Italy) |
02:35pm – 02:55pm |
Speech impairment in Glut1 Deficiency Syndrome Valentina DeGiorgis, MD (Mondino, Italy) |
02:55pm – 03:15pm |
German Glut1DS speech study Dr. Anne Jurkutat (Würzburg, Germany) |
03:15pm – 03:25pm | Discussion |
03:25pm – 03:45pm |
Transition + adult ketogenic outpatients Adela Della Marina, MD (Essen, Germany), Stefan Klebe, MD (Essen, Germany) & Johann Philipp Zöllner (Frankfurt a. M., Germany) |
03:45pm – 04:05pm |
Adult ketogenic outpatient clinic Dr. Johann Philipp Zöllner (Frankfurt a. M., Germany) |
04:05pm – 04:15pm | Discussion |
04:15pm – 04:45pm | Break /Coffee-Tea (exhibition hall) |
04:45pm – 05:30pm
05:30pm-06:15pm |
Round Tables Round Table I: “Building a European Glut1 network” Introduction of Glut1DS support groups Moderators: Trudy Morgan (Glut1 Deficiency Foundation, Arbroath, UK) & Glenna Steele (Glut1 Foundation, USA) Round Table II “My life with Glut1 Deficiency Syndrome” Talk among young adults with Glut1DS Moderators: Joerg Klepper, MD (Aschaffenburg, Germany) & Eric Kossoff, MD (Baltimore, USA) |
06:15pm – 07:00pm | Free time, get changed, collect kids … |
07:00pm – 11:00pm |
Bavarian evening (Kirchner Saal, 1st floor) |
07:30am – 05:00pm | Registration Desk Open |
08:00am – 08:45am |
Breakfast Seminar: “The spectrum of ketogenic dietary therapies- overview and FaQs” Marisa Armeno, MD, PhD (Buenos Aires, Argentina) & Sabine Scholl-Bürgi, MD (Innsbruck, Austria) |
Session IV: Ketogenic Dietary Therapies (KDT) | |
08:45am – 09:00am |
Welcome II Jörg Klepper, MD (Aschaffenburg, Germany) |
09:00am – 09:05am |
Introduction & Moderators: Helen Cross, MD (London, UK) & Sara Olivotto, MD (Pavia, Italy) |
09:05am – 09:40am |
KDT – where do we stand in 2023? Update and challenges Eric Kossoff, MD (Baltimore, USA) |
09:40am – 10:05am |
Ketones, ketoesters and triheptanoin – Alternatives to KDT? Juan Pascual (Dallas, Tx, USA) |
10:05am – 10:30am |
Use of intravenous KDT in the Intensive Care Unit Stephane Auvin, MD (Paris, France) |
10:30am – 11:00am |
Break/Coffee-Tea (exhibition hall) |
Session V: Ketogenic Dietary Therapies (KDT) – Beyond Routine | |
11:00am – 11:05am |
Introduction & Moderators: Stephane Auvin, MD (Paris, France) & Marisa Armeno, MD (Buenos Aires, Argentina) |
11:05am – 11:30am |
KDT for inborn errors of metabolism Sabine Scholl-Bürgi, MD (Innsbruck, Austria) |
11:30am – 12:00pm |
KDT in infants Anastasia Male-Dressler, MD (Vienna, Austria) |
12:00pm – 12:30pm |
Failure of KDT Michèl Willemsen, MD (Nijmegen, Netherlands) |
12:30pm – 01:00pm |
KDT and the microbiome Jong Rho (San Diego) |
01:00pm – 02:15pm | Lunch Break (exhibition hall) |
Session VI: Dietary Aspects of Ketogenic Dietary Therapies (KDT) | |
02:15pm – 02:20pm |
Introduction and Moderators: Mackenizie Cervenka, MD (Baltimore, USA) & Joerg Klepper, MD (Aschaffenburg, Germany) |
02:20pm – 02:40pm |
Can you provide KDT in pregnancy? Elles van der Louw, RD PhD (Rotterdam, Netherlands) |
02:40pm – 03:05pm |
Chance or risk: what is the best lipid composition in KDT Marisa Laura Armeno, MD, PhD (Buenos Aires, Argentina) |
03:05pm – 03:35pm |
Pitfalls in KDT for adults Mackenizie Cervenka, MD (Baltimore, USA) |
03:35am – 04:00pm |
Vegan KDT Susanne Baum, RD (Vogtareuth, Germany) |
04:00pm – 04:30pm |
Closing session and invitation to San Diego Joerg Klepper, MD (Aschaffenburg, Germany), Jong Rho, MD (San Diego, USA) & Stephane Auvin, MD (Paris, France) Invitation to San Diego 2023 Invitation to Paris 2025 |
04:30pm | End of meeting |
An interactive cooking workshop for children from 12 years, teenagers, and young adults. The event is free of charge. The number of participants is limited. Program enclosed
When: Friday 16 June 2023 from 9 a.m. to 12 p.m.
Where: VHS Aschaffenburg, Luitpoldstraße 2, 63739 Aschaffenburg
Topics:
In cooperation with:
Registration: https://www.ketocal.de/service/anmeldeformular-events/
Individual arrival | |
05:30pm – 08:00pm | Registration |
06:00pm – 08:00pm |
Welcome Reception/Get-together (incl. opening of exhibition, 1st floor) |
08:00pm | End of Pre-Conference Day |
07:30am – 06:30pm | Opening Registration Desk |
08:00am – 08:45am |
Breakfast Seminar: “The Glut1DS story” Joerg Klepper, MD (Aschaffenburg, Germany) |
08:45am – 09:00am |
Opening messages Jürgen Herzing (Aschaffenburg, Germany) Darryl De Vivo, MD (New York, USA) |
Session I: Glut1 Research | |
09:00am – 09:05am |
Introduction & Moderators: Juan Pascual, MD (Dallas, USA) & Umrao Monani, PhD (New York City, USA) |
09:05am – 09:35am |
How does the diet work? Ketogenic dietary effects and mechanisms in brain metabolism Jong M. Rho, MD (San Diego, USA) |
09:35am – 10:05am |
How to feed hungry neurons: the astrocyteneuron- lactate-shuttle Pierre Magistretti, MD (Lausanne, Switzerland) |
10:05am – 10:30am |
The Genetics of Glut1 Deficiency Syndrome Sameer Zuberi, MD (Glasgow, UK) |
10:30am – 11:00am |
Break/Coffee-Tea (exhibition hall) |
Session II: Novel Therapies for Glut1 Deficiency Syndrome | |
11:00am – 11:05am |
Introduction & Moderators: Sameer Zuberi, MD (Glasgow, UK) & Jong Rho, MD (San Diego, USA) |
11:05am – 11:30am |
C10 for Glut1 Deficiency Syndrome Helen Cross, MD, PhD (London, UK) |
11:30am – 12:00pm |
Lactate for Glut1 Deficiency Syndrome Michèl Willemsen, MD (Nijmegen, Netherlands) |
12:00pm – 12:30pm |
New mechanisms and potential treatments for Glut1 deficiency: Studies in cells, mice, children and adults. Juan Pascual, MD (Dallas, USA) |
12:30pm – 01:00pm |
Gene therapy for Glut1 Deficiency Syndrome Umrao Monani, PhD (New York City, USA) |
01:00pm – 02:15pm |
Lunch Break and Suggestions and discussion for starting and continuing a successful Glut1DS treatment Moderator: Eric Kossoff, MD (Baltimore, USA) Speakers: Sabine Scholl-Bürgi, MD (Innsbruck, Austria), Frauke Lang, RD (Mainz, Germany), Frank Brandhoff, MD (Radeberg, Germany) Topics: |
Session III: Living with Glut1 Deficiency Syndrome and Ketogenic Dietary Therapies | |
02:15pm – 02:20pm |
Introduction & Moderators Mackenzie Cervenka, MD (Baltimore, USA), |
02:20pm – 02:35pm |
Life quality in Glut1 Deficiency Syndrome Sara Olivotto, MD (Pavia, Italy) |
02:35pm – 02:55pm |
Speech impairment in Glut1 Deficiency Syndrome Valentina DeGiorgis, MD (Mondino, Italy) |
02:55pm – 03:15pm |
German Glut1DS speech study Anne Jurkutat (Würzburg, Germany) |
03:15pm – 03:25pm | Discussion |
03:25pm – 03:45pm |
Transition + adult ketogenic outpatients Adela Della Marina, MD (Essen, Germany), Stefan Klebe, MD (Essen, Germany) & Johann Philipp Zöllner (Frankfurt a. M., Germany) |
03:45pm – 04:05pm |
Adult ketogenic outpatient clinic Dr. Johann Philipp Zöllner (Frankfurt a. M., Germany) |
04:05pm – 04:15pm | Discussion |
04:15pm – 04:45pm | Break /Coffee-Tea (exhibition hall) |
04:45pm – 05:30pm
05:30pm-06:15pm |
Round Tables Round Table I: “Building a European Glut1 network” Introduction of Glut1DS support groups Moderators: Trudy Morgan (Glut1 Deficiency Foundation, Arbroath, UK) & Glenna Steele (Glut1 Foundation, USA) Round Table II “My life with Glut1 Deficiency Syndrome” Talk among young adults with Glut1DS Moderators: Joerg Klepper, MD (Aschaffenburg, Germany) & Eric Kossoff, MD (Baltimore, USA) |
06:15pm – 07:00pm | Free time, get changed, collect kids … |
07:00pm – 11:00pm |
Bavarian evening (Kirchner Saal, 1st floor) |
07:30am – 05:00pm | Registration Desk Open |
08:00am – 08:45am |
Breakfast Seminar: “The spectrum of ketogenic dietary therapies- overview and FaQs” Marisa Armeno, MD, PhD (Buenos Aires, Argentina) & Sabine Scholl-Bürgi, MD (Innsbruck, Austria) |
Session IV: Ketogenic Dietary Therapies (KDT) | |
08:45am – 09:00am |
Welcome II Jörg Klepper, MD (Aschaffenburg, Germany) |
09:00am – 09:05am |
Introduction & Moderators: Helen Cross, MD (London, UK) & Sara Olivotto, MD (Pavia, Italy) |
09:05am – 09:40am |
KDT – where do we stand in 2023? Update and challenges Eric Kossoff, MD (Baltimore, USA) |
09:40am – 10:05am |
Ketones, ketoesters and triheptanoin – Alternatives to KDT? Juan Pascual (Dallas, Tx, USA) |
10:05am – 10:30am |
Use of intravenous KDT in the Intensive Care Unit Stephane Auvin, MD (Paris, France) |
10:30am – 11:00am |
Break/Coffee-Tea (exhibition hall) |
Session V: Ketogenic Dietary Therapies (KDT) – Beyond Routine | |
11:00am – 11:05am |
Introduction & Moderators: Stephane Auvin, MD (Paris, France) & Marisa Armeno, MD (Buenos Aires, Argentina) |
11:05am – 11:30am |
KDT for inborn errors of metabolism Sabine Scholl-Bürgi, MD (Innsbruck, Austria) |
11:30am – 12:00pm |
KDT in infants Anastasia Male-Dressler, MD (Vienna, Austria) |
12:00pm – 12:30pm |
Failure of KDT Michèl Willemsen, MD (Nijmegen, Netherlands) |
12:30pm – 01:00pm |
KDT and the microbiome Jong Rho (San Diego) |
01:00pm – 02:15pm | Lunch Break |
Session VI: Dietary Aspects of Ketogenic Dietary Therapies (KDT) | |
02:15pm – 02:20pm |
Introduction and Moderators: Mackenzie Cervenka, MD (Baltimore, USA) & Joerg Klepper, MD (Aschaffenburg, Germany) |
02:20pm – 02:40pm |
Can you provide KDT in pregnancy? Elles van der Louw, RD PhD (Rotterdam, Netherlands) |
02:40pm – 03:05pm |
Chance or risk: what is the best lipid composition in KDT Marisa Laura Armeno, MD, PhD (Buenos Aires, Argentina) |
03:05pm – 03:35pm |
Pitfalls in KDT for adults Mackenzie Cervenka, MD (Baltimore, USA) |
03:35am – 04:00pm |
Vegan KDT Susanne Baum, RD (Vogtareuth, Germany) |
04:00pm – 04:30pm |
Closing session and invitation to San Diego Joerg Klepper, MD (Aschaffenburg, Germany) & Jong Rho, MD (San Diego) |
04:30pm | End of meeting |
Most of the abstracts are available in English, German and Italian. You can find all translations in the given document.
15 – 16th June 2023
Stadthalle am Schloss
Schloßplatz 1
63739 Aschaffenburg, Germany
wikonect GmbH
Hagenauer Straße 53
65203 Wiesbaden, Germany
www.wikonect.de
PROJECT MANAGEMENT
Christina Wittlich
PARTICIPANT MANAGEMENT
Christiane Altmann
Tel.: +49 611 204809 – 237
christiane.altmann@wikonect.de
Prof. Dr. med. Jörg Klepper
University of Aschaffenburg
Clinic for Children and Youth Medicine
joerg.klepper@klinikum-ab-alz.de
Inhalt des Info-Points.
Programminhalt
Inhalt der Evaluation.