Program and Speakers

SCIENTIFIC PROGRAM SCHEDULE

Wednesday, June 14th

	Individual arrival
05:30pm – 08:00pm	Registration
06:00pm – 08:00pm	Welcome Reception/Get-together (incl. opening of exhibition, 1st floor)
10:00pm	End of Pre-Conference Day

Thursday, June 15th

07:30am – 06:30pm	Opening Registration Desk
08:00am – 08:40am	Breakfast Seminar: “The Glut1DS story” Joerg Klepper, MD (Aschaffenburg, Germany)
08:45am – 09:00am	Opening messages Jürgen Herzing (Aschaffenburg, Germany) Darryl De Vivo, MD (New York, USA)
Session I: Glut1 Research
09:00am – 09:05am	Introduction & Moderators: Juan Pascual, MD (Dallas, USA) & Umrao Monani, PhD (New York City, USA)
09:05am – 09:35am	How does the diet work? Ketogenic dietary effects and mechanisms in brain metabolism Jong M. Rho, MD (San Diego, USA)
09:35am – 10:05am	How to feed hungry neurons: the astrocyteneuron- lactate-shuttle Pierre Magistretti, MD (Lausanne, Switzerland)
10:05am – 10:30am	The Genetics of Glut1 Deficiency Syndrome Sameer Zuberi, MD (Glasgow, UK)
10:30am – 11:00am	Break/Coffee-Tea, Show-cooking (exhibition hall)
Session II: Novel Therapies for Glut1 Deficiency Syndrome
11:00am – 11:05am	Introduction & Moderators: Sameer Zuberi, MD (Glasgow, UK) & Jong Rho, MD (San Diego, USA)
11:05am – 11:30am	C10 for Glut1 Deficiency Syndrome Helen Cross, MD, PhD (London, UK)
11:30am – 12:00pm	Lactate for Glut1 Deficiency Syndrome Michèl Willemsen, MD (Nijmegen, Netherlands)
12:00pm – 12:30pm	New mechanisms and potential treatments for Glut1 deficiency: Studies in cells, mice, children and adults. Juan Pascual, MD (Dallas, USA)
12:30pm – 01:00pm	Gene therapy for Glut1 Deficiency Syndrome Umrao Monani, PhD (New York City, USA)
01:00pm – 02:15pm	Lunch Break and Lunch Symposium I
Session III: Living with Glut1 Deficiency Syndrome and Ketogenic Dietary Therapies
02:15pm – 02:35pm	Life quality in Glut1 Deficiency Syndrome Sara Olivotto, MD (Pavia, Italy)
02:35pm – 02:55pm	Speech impairment in Glut1 Deficiency Syndrome Valentina DeGiorgis, MD (Mondino, Italy)
02:55pm – 03:15pm	German Glut1DS speech study Anne Jurkutat, Dr. (Würzburg, Germany)
03:15pm – 03:25pm	Discussion
03:25pm – 03:45pm	Transition + adult ketogenic outpatients Adela Della Marina, MD (Essen, Germany), Stefan Klebe, MD (Essen, Germany) & Johann Philipp Zöllner (Frankfurt a. M., Germany)
03:45pm – 04:05pm	Adult ketogenic outpatient clinic Dr. Johann Philipp Zöllner (Frankfurt a. M., Germany)
04:05pm – 04:15pm	Discussion
04:15pm – 04:45pm	Break /Coffee-Tea
04:45pm – 06:15pm	Round Tables Round Table I: “Building a European Glut1 network” Introduction of Glut1DS support groups Moderators: Trudy Morgan (Glut1 Deficiency Foundation, Arbroath, UK) & Glenna Steele (Glut1 Foundation, USA) Round Table II “My life with Glut1 Deficiency Syndrome” Talk among young adults with Glut1DS Moderators: Joerg Klepper, MD (Aschaffenburg, Germany) & Eric Kossoff, MD (Baltimore, USA)
06:15pm – 07:00pm	Free time, get changed, collect kids …
07:00pm – 11:00pm	Bavarian evening (Kirchner Saal, 1st floor)

Friday, June 16th

07:30am – 05:00pm	Registration Desk Open
08:00am – 09:00am	Breakfast Seminar: “The spectrum of ketogenic dietary therapies- overview and FaQs” Marisa Armeno, MD, PhD (Buenos Aires, Argentina) & Sabine Scholl-Bürgi, MD (Innsbruck, Austria)
Session IV: Ketogenic Dietary Therapies (KDT)
08:45am – 09:00am	Welcome II Jörg Klepper, MD (Aschaffenburg, Germany)
09:00am – 09:05am	Introduction & Moderators: Helen Cross, MD (London, UK) & Sara Olivotto, MD (Pavia, Italy)
09:05am – 09:40am	KDT – where do we stand in 2023? Update and challenges Eric Kossoff, MD (Baltimore, USA)
09:40am – 10:05am	Ketones, ketoesters and triheptanoin – Alternatives to KDT? Juan Pascual (Dallas, Tx, USA)
10:05am – 10:30am	Use of intravenous KDT in the Intensive Care Unit Stephane Auvin, MD (Paris, France)
10:30am – 11:00am	Break/Coffee-Tea (exhibition hall)
Session V: Ketogenic Dietary Therapies (KDT) – Beyond Routine
11:00am – 11:05am	Introduction & Moderators: Stephane Auvin, MD (Paris, France) & Marisa Armeno, MD (Buenos Aires, Argentina)
11:05am – 11:30am	KDT for inborn errors of metabolism Sabine Scholl-Bürgi, MD (Innsbruck, Austria)
11:30am – 12:00pm	KDT in infants Anastasia Male-Dressler, MD (Vienna, Austria)
12:00pm – 12:30pm	Failure of KDT Michèl Willemsen, MD (Nijmegen, Netherlands)
12:30pm – 01:00pm	KDT and the microbiome Jong Rho (San Diego)
01:00pm – 02:15pm	Lunch Break and Lunch Symposium II
Session VI: Dietary Aspects of Ketogenic Dietary Therapies (KDT)
02:15pm – 02:20pm	Introduction and Moderators: Mackenizie Cervenka, MD (Baltimore, USA) & Joerg Klepper, MD (Aschaffenburg, Germany)
02:20pm – 02:40pm	Can you provide KDT in pregnancy? Elles van der Louw, RD PhD (Rotterdam, Netherlands)
02:40pm – 03:05pm	Chance or risk: what is the best lipid composition in KDT Marisa Laura Armeno, MD, PhD (Buenos Aires, Argentina)
03:05pm – 03:35pm	Pitfalls in KDT for adults Mackenizie Cervenka, MD (Baltimore, USA)
03:35am – 04:00pm	Vegan KDT Susanne Baum, RD (Vogtareuth, Germany)
04:00pm – 04:30pm	Closing session and invitation to San Diego Joerg Klepper, MD (Aschaffenburg, Germany) & Jong Rho, MD (San Diego)
04:30pm	End of meeting