Program and Speakers

SCIENTIFIC PROGRAM SCHEDULE

Wednesday, June 14th

  Individual arrival
05:30pm – 08:00pm Registration
06:00pm – 08:00pm

Welcome Reception/Get-together

(incl. opening of exhibition, 1st floor)

08:00pm End of Pre-Conference Day
08:00pm – 10:00 pm Speaker‘s dinner and guided city tour (speakers only)
(meeting point: at 08:00 pm at the main entrance of the Stadthalle Aschaffenburg)

Thursday, June 15th

07:30am – 06:30pm Opening Registration Desk
08:00am – 08:45am

Breakfast Seminar: “The Glut1DS story”

Joerg Klepper, MD (Aschaffenburg, Germany)

08:45am – 09:00am

Opening messages

Jürgen Herzing (Aschaffenburg, Germany)

Darryl De Vivo, MD (New York, USA)

Session I: Glut1 Research
09:00am – 09:05am

Introduction & Moderators:

Juan Pascual, MD (Dallas, USA) &

Umrao Monani, PhD (New York City, USA)

09:05am – 09:35am

How does the diet work? Ketogenic dietary

effects and mechanisms in brain metabolism

Jong M. Rho, MD (San Diego, USA)

09:35am – 10:05am

How to feed hungry neurons: the astrocyteneuron-

lactate-shuttle

Pierre Magistretti, MD (Lausanne, Switzerland)

10:05am – 10:30am

The Genetics of Glut1 Deficiency Syndrome

Sameer Zuberi, MD (Glasgow, UK)

10:30am – 11:00am

Break/Coffee-Tea (exhibition hall)

Session II: Novel Therapies for Glut1 Deficiency Syndrome
11:00am – 11:05am

Introduction & Moderators:

Sameer Zuberi, MD (Glasgow, UK) &

Jong Rho, MD (San Diego, USA)

11:05am – 11:30am

C10 for Glut1 Deficiency Syndrome

Helen Cross, MD, PhD (London, UK)

11:30am – 12:00pm

Lactate for Glut1 Deficiency Syndrome

Michèl Willemsen, MD (Nijmegen, Netherlands)

12:00pm – 12:30pm

New mechanisms and potential treatments for Glut1 deficiency:

Studies in cells, mice, children and adults.

Juan Pascual, MD (Dallas, USA)

12:30pm – 01:00pm

Gene therapy for Glut1 Deficiency Syndrome

Umrao Monani, PhD (New York City, USA)

01:00pm – 02:15pm

Lunch Break (exhibition hall) and
Lunch Symposium of Nutricia Metabolics

Suggestions and discussion for starting and continuing a successful Glut1DS treatment
Challenges in starting and maintaining KDT throughout life  Adolescents and beyond × Adult case studies

Moderator: Eric Kossoff, MD (Baltimore, USA)

Speakers: Sabine Scholl-Bürgi, MD (Innsbruck, Austria), Frauke Lang, RD (Mainz, Germany), Frank Brandhoff, MD (Radeberg, Germany)

Topics:
– Challenges in starting and maintaining KDT throughout life
– Adolescents and beyond
– Adult case studies

Session III: Living with Glut1 Deficiency Syndrome and Ketogenic Dietary Therapies
02:15pm – 02:20pm

Introduction & Moderators

Mackenzie Cervenka, MD (Baltimore, USA),
Glenna Steele (Glut1 Foundation, USA) &
Willemijn Leen (Nijmegen, The Netherlands)

02:20pm – 02:35pm Life quality in Glut1 Deficiency Syndrome
Sara Olivotto, MD (Pavia, Italy)
02:35pm – 02:55pm

Speech impairment in Glut1 Deficiency Syndrome

Valentina DeGiorgis, MD (Mondino, Italy)

02:55pm – 03:15pm

German Glut1DS speech study

Dr. Anne Jurkutat (Würzburg, Germany)

03:15pm – 03:25pm Discussion
03:25pm – 03:45pm

Transition + adult ketogenic outpatients

Adela Della Marina, MD (Essen, Germany), Stefan Klebe, MD (Essen, Germany) & Johann Philipp Zöllner (Frankfurt a. M., Germany)

03:45pm – 04:05pm

Adult ketogenic outpatient clinic

Dr. Johann Philipp Zöllner (Frankfurt a. M., Germany)

04:05pm – 04:15pm Discussion
04:15pm – 04:45pm Break /Coffee-Tea (exhibition hall)

04:45pm – 05:30pm

 

 

 

 

 

05:30pm-06:15pm

Round Tables

Round Table I:

“Building a European Glut1 network”

Introduction of Glut1DS support groups

Moderators: Trudy Morgan (Glut1 Deficiency

Foundation, Arbroath, UK) & Glenna Steele

(Glut1 Foundation, USA)

Round Table II

“My life with Glut1 Deficiency Syndrome”

Talk among young adults with Glut1DS

Moderators: Joerg Klepper, MD (Aschaffenburg, Germany) & Eric Kossoff, MD (Baltimore, USA)

06:15pm – 07:00pm Free time, get changed, collect kids …
07:00pm – 11:00pm

Bavarian evening

(Kirchner Saal, 1st floor)

Friday, June 16th

07:30am – 05:00pm Registration Desk Open
08:00am – 08:45am

Breakfast Seminar: “The spectrum of ketogenic dietary therapies- overview

and FaQs”

Marisa Armeno, MD, PhD (Buenos Aires, Argentina) &

Sabine Scholl-Bürgi, MD (Innsbruck, Austria)

Session IV: Ketogenic Dietary Therapies (KDT)
08:45am – 09:00am

Welcome II

Jörg Klepper, MD (Aschaffenburg, Germany)

09:00am – 09:05am

Introduction & Moderators:

Helen Cross, MD (London, UK) &

Sara Olivotto, MD (Pavia, Italy)

09:05am – 09:40am

KDT – where do we stand in 2023? Update and challenges

Eric Kossoff, MD (Baltimore, USA)

09:40am – 10:05am

Ketones, ketoesters and triheptanoin – Alternatives to KDT?

Juan Pascual (Dallas, Tx, USA)

10:05am – 10:30am

Use of intravenous KDT in the Intensive Care Unit

Stephane Auvin, MD (Paris, France)

10:30am – 11:00am

Break/Coffee-Tea (exhibition hall)

Session V: Ketogenic Dietary Therapies (KDT) – Beyond Routine
11:00am – 11:05am

Introduction & Moderators:

Stephane Auvin, MD (Paris, France) &

Marisa Armeno, MD (Buenos Aires, Argentina)

11:05am – 11:30am

KDT for inborn errors of metabolism

Sabine Scholl-Bürgi, MD (Innsbruck, Austria)

11:30am – 12:00pm

KDT in infants

Anastasia Male-Dressler, MD (Vienna, Austria)

12:00pm – 12:30pm

Failure of KDT

Michèl Willemsen, MD (Nijmegen, Netherlands)

12:30pm – 01:00pm

KDT and the microbiome

Jong Rho (San Diego)

01:00pm – 02:15pm Lunch Break (exhibition hall)
Session VI: Dietary Aspects of Ketogenic Dietary Therapies (KDT)
02:15pm – 02:20pm

Introduction and Moderators:

Mackenizie Cervenka, MD (Baltimore, USA) &

Joerg Klepper, MD (Aschaffenburg, Germany)

02:20pm – 02:40pm

Can you provide KDT in pregnancy?

Elles van der Louw, RD PhD (Rotterdam, Netherlands)

02:40pm – 03:05pm

Chance or risk: what is the best lipid composition in KDT

Marisa Laura Armeno, MD, PhD (Buenos Aires, Argentina)

03:05pm – 03:35pm

Pitfalls in KDT for adults

Mackenizie Cervenka, MD (Baltimore, USA)

03:35am – 04:00pm

Vegan KDT

Susanne Baum, RD (Vogtareuth, Germany)

04:00pm – 04:30pm

Closing session and invitation to San Diego

Joerg Klepper, MD (Aschaffenburg, Germany), Jong Rho, MD (San Diego, USA) & Stephane Auvin, MD (Paris, France)

Invitation to San Diego 2023
Jong Rho (San Diego, USA)

Invitation to Paris 2025
Stephane Auvin, MD (Paris, France)

04:30pm End of meeting

Cooking workshop „Independent management of GLUT1 deficiency syndrome“

Learn more about the workshop

An interactive cooking workshop for children from 12 years, teenagers, and young adults. The event is free of charge. The number of participants is limited. Program enclosed 

When: Friday 16 June 2023 from 9 a.m. to 12 p.m.

Where: VHS Aschaffenburg, Luitpoldstraße 2, 63739 Aschaffenburg

Topics:

  • Preparing simple ketogenic dishes
  • Suggestions for an independent organization of the diet
  • Support with calculation of dishes
  • Tips for more food variety in everyday keto life
  • Exchange of experiences with each other

 

 

In cooperation with:

     

 

Registration: https://www.ketocal.de/service/anmeldeformular-events/

SCIENTIFIC PROGRAM SCHEDULE

Wednesday, June 14th

 

  Individual arrival
05:30pm – 08:00pm Registration
06:00pm – 08:00pm

Welcome Reception/Get-together

(incl. opening of exhibition, 1st floor)

08:00pm End of Pre-Conference Day

Thursday, June 15th

 

07:30am – 06:30pm Opening Registration Desk
08:00am – 08:45am

Breakfast Seminar: “The Glut1DS story”

Joerg Klepper, MD (Aschaffenburg, Germany)

08:45am – 09:00am

Opening messages

Jürgen Herzing (Aschaffenburg, Germany)

Darryl De Vivo, MD (New York, USA)

Session I: Glut1 Research
09:00am – 09:05am

Introduction & Moderators:

Juan Pascual, MD (Dallas, USA) &

Umrao Monani, PhD (New York City, USA)

09:05am – 09:35am

How does the diet work? Ketogenic dietary

effects and mechanisms in brain metabolism

Jong M. Rho, MD (San Diego, USA)

09:35am – 10:05am

How to feed hungry neurons: the astrocyteneuron-

lactate-shuttle

Pierre Magistretti, MD (Lausanne, Switzerland)

10:05am – 10:30am

The Genetics of Glut1 Deficiency Syndrome

Sameer Zuberi, MD (Glasgow, UK)

10:30am – 11:00am

Break/Coffee-Tea

(exhibition hall)

Session II: Novel Therapies for Glut1 Deficiency Syndrome
11:00am – 11:05am

Introduction & Moderators:

Sameer Zuberi, MD (Glasgow, UK) &

Jong Rho, MD (San Diego, USA)

11:05am – 11:30am

C10 for Glut1 Deficiency Syndrome

Helen Cross, MD, PhD (London, UK)

11:30am – 12:00pm

Lactate for Glut1 Deficiency Syndrome

Michèl Willemsen, MD (Nijmegen, Netherlands)

12:00pm – 12:30pm

New mechanisms and potential treatments for Glut1 deficiency:

Studies in cells, mice, children and adults.

Juan Pascual, MD (Dallas, USA)

12:30pm – 01:00pm

Gene therapy for Glut1 Deficiency Syndrome

Umrao Monani, PhD (New York City, USA)

01:00pm – 02:15pm

Lunch Break and
Lunch Symposium of Nutricia Metabolics

Suggestions and discussion for starting and continuing a successful Glut1DS treatment
Challenges in starting and maintaining KDT throughout life  Adolescents and beyond × Adult case studies

Moderator: Eric Kossoff, MD (Baltimore, USA)

Speakers: Sabine Scholl-Bürgi, MD (Innsbruck, Austria), Frauke Lang, RD (Mainz, Germany), Frank Brandhoff, MD (Radeberg, Germany)

Topics:
– Challenges in starting and maintaining KDT throughout life
– Adolescents and beyond
– Adult case studies

Session III: Living with Glut1 Deficiency Syndrome and Ketogenic Dietary Therapies
02:15pm – 02:20pm

Introduction & Moderators

Mackenzie Cervenka, MD (Baltimore, USA),
Glenna Steele (Glut1 Foundation, USA) &
Willemijn Leen (Nijmegen, The Netherlands)

02:20pm – 02:35pm

Life quality in Glut1 Deficiency Syndrome

Sara Olivotto, MD (Pavia, Italy)

02:35pm – 02:55pm

Speech impairment in Glut1 Deficiency Syndrome

Valentina DeGiorgis, MD (Mondino, Italy)

02:55pm – 03:15pm

German Glut1DS speech study

Anne Jurkutat (Würzburg, Germany)

03:15pm – 03:25pm Discussion
03:25pm – 03:45pm

Transition + adult ketogenic outpatients

Adela Della Marina, MD (Essen, Germany), Stefan Klebe, MD (Essen, Germany) &

Johann Philipp Zöllner (Frankfurt a. M., Germany)

03:45pm – 04:05pm

Adult ketogenic outpatient clinic

Dr. Johann Philipp Zöllner (Frankfurt a. M., Germany)

04:05pm – 04:15pm Discussion
04:15pm – 04:45pm Break /Coffee-Tea (exhibition hall)

04:45pm – 05:30pm

 

 

 

 

 

05:30pm-06:15pm

Round Tables

Round Table I:

“Building a European Glut1 network”

Introduction of Glut1DS support groups

Moderators: Trudy Morgan (Glut1 Deficiency

Foundation, Arbroath, UK) & Glenna Steele

(Glut1 Foundation, USA)

Round Table II

“My life with Glut1 Deficiency Syndrome”

Talk among young adults with Glut1DS

Moderators: Joerg Klepper, MD (Aschaffenburg,

Germany) & Eric Kossoff, MD (Baltimore,

USA)

06:15pm – 07:00pm Free time, get changed, collect kids …
07:00pm – 11:00pm

Bavarian evening

(Kirchner Saal, 1st floor)

Friday, June 16th

 

07:30am – 05:00pm Registration Desk Open
08:00am – 08:45am

Breakfast Seminar: “The spectrum of ketogenic dietary therapies- overview

and FaQs”

Marisa Armeno, MD, PhD (Buenos Aires, Argentina) &

Sabine Scholl-Bürgi, MD (Innsbruck, Austria)

Session IV: Ketogenic Dietary Therapies (KDT)
08:45am – 09:00am

Welcome II

Jörg Klepper, MD (Aschaffenburg, Germany)

09:00am – 09:05am

Introduction & Moderators:

Helen Cross, MD (London, UK) &

Sara Olivotto, MD (Pavia, Italy)

09:05am – 09:40am

KDT – where do we stand in 2023? Update and challenges

Eric Kossoff, MD (Baltimore, USA)

09:40am – 10:05am

Ketones, ketoesters and triheptanoin – Alternatives to KDT?

Juan Pascual (Dallas, Tx, USA)

10:05am – 10:30am

Use of intravenous KDT in the Intensive Care Unit

Stephane Auvin, MD (Paris, France)

10:30am – 11:00am

Break/Coffee-Tea (exhibition hall)

Session V: Ketogenic Dietary Therapies (KDT) – Beyond Routine
11:00am – 11:05am

Introduction & Moderators:

Stephane Auvin, MD (Paris, France) &

Marisa Armeno, MD (Buenos Aires, Argentina)

11:05am – 11:30am

KDT for inborn errors of metabolism

Sabine Scholl-Bürgi, MD (Innsbruck, Austria)

11:30am – 12:00pm

KDT in infants

Anastasia Male-Dressler, MD (Vienna, Austria)

12:00pm – 12:30pm

Failure of KDT

Michèl Willemsen, MD (Nijmegen, Netherlands)

12:30pm – 01:00pm

KDT and the microbiome

Jong Rho (San Diego)

01:00pm – 02:15pm Lunch Break
Session VI: Dietary Aspects of Ketogenic Dietary Therapies (KDT)
02:15pm – 02:20pm

Introduction and Moderators:

Mackenzie Cervenka, MD (Baltimore, USA) &

Joerg Klepper, MD (Aschaffenburg, Germany)

02:20pm – 02:40pm

Can you provide KDT in pregnancy?

Elles van der Louw, RD PhD (Rotterdam, Netherlands)

02:40pm – 03:05pm

Chance or risk: what is the best lipid composition in KDT

Marisa Laura Armeno, MD, PhD (Buenos Aires, Argentina)

03:05pm – 03:35pm

Pitfalls in KDT for adults

Mackenzie Cervenka, MD (Baltimore, USA)

03:35am – 04:00pm

Vegan KDT

Susanne Baum, RD (Vogtareuth, Germany)

04:00pm – 04:30pm

Closing session and invitation to San Diego

Joerg Klepper, MD (Aschaffenburg, Germany) &

Jong Rho, MD (San Diego)

04:30pm End of meeting

SPEAKER OVERVIEW

Most of the abstracts are available in English, German and Italian. You can find all translations in the given document.

Dr. Marisa Armeno

Abstract

Curriculum Vitae

Dr. Stephane Auvin

Abstract

Curriculum Vitae

RD Susanne Baum

Abstract

Curriculum Vitae

Dr. Frank Brandhoff

Abstract

Curriculum Vitae

Dr. Mackenzie Cervenka

Abstract

Curriculum Vitae

Dr. Helen Cross

Abstract

Curriculum Vitae

Dr. Valentina De Giorgis

Abstract

Curriculum Vitae

Dr. Adela Della Marina

Abstract

Curriculum Vitae

Dr. Anastasia Male-Dressler

Abstract

Curriculum Vitae

Dr. Anne Jurkutat

Abstract

Curriculum Vitae

Dr. Stefan Klebe

Abstract

Curriculum Vitae

Dr. Jörg Klepper

Abstract

Curriculum Vitae

Dr. Eric Kossoff

Abstract

Curriculum Vitae

Frauke Lang

Curriculum Vitae

Dr. Pierre Magistretti

Abstract

Curriculum Vitae

Dr. Umrao Monani

Abstract

Curriculum Vitae

Trudy Morgan

Abstract

Curriculum Vitae

Dr. Johann Philipp Zöllner

Abstract

Curriculum Vitae

Dr. Juan Pascual

Abstract

Curriculum Vitae

Dr. Jong Rho

Abstract

Curriculum Vitae

Dr. Sabine Scholl-Bürgi

Abstract

Curriculum Vitae

Glenna Steele

Abstract

Curriculum Vitae

Dr. Elles van der Louw

Abstract

Curriculum Vitae

Dr. Sara Olivotto

Abstract

Curriculum Vitae

Dr. Michel Willemsen

Abstract

Curriculum Vitae

Dr. Sameer Zuberi

Abstract

Curriculum Vitae

CONGRESS DATE & VENUE

15 – 16th June 2023
Stadthalle am Schloss
Schloßplatz 1
63739 Aschaffenburg, Germany

CONGRESS ORGANISATION

wikonect GmbH
Hagenauer Straße 53
65203 Wiesbaden, Germany
www.wikonect.de

PROJECT MANAGEMENT
Christina Wittlich

PARTICIPANT MANAGEMENT
Christiane Altmann
Tel.: +49 611 204809 – 237
christiane.altmann@wikonect.de

SCIENTIFIC ORGANISER

Prof. Dr. med. Jörg Klepper
University of Aschaffenburg
Clinic for Children and Youth Medicine
joerg.klepper@klinikum-ab-alz.de